Although I am currently sitting with one leg up on the coffee table, Robaxacet and a shot of Toradol on board, an icepack on my sciatic nerve One butt cheek propped on a couch cushion, in my new home in the middle of the frozen Down wit It's the most Holy of Holies in our little corner of the disability universe. Blue and yellow will be everywhere and Sedna help us, we are still with the mismatched and "silly" socks. There will be pride, yes The extra chromosome, the conditionthe disability, the whatever-you-want-to-call it, the thing that is Down syndrome, does not preclude one from Down wit humanity, their right to happiness and the ability to seek that happiness.
Be loud and goddamned proud.
I'm also very aware that I don't get to hold my son every day any more But, that doesn't make me any less involved in Down wit parenting even though I am physically thousands of miles away from him. Ahhh, my little man and his newly found skills In the time since my last post, he is now walking and running.
He is talking more and although he has always been very good at getting his point across using a combination of Down wit and Wyatt-sign and sounds and body language, he's decided to go with words. Which is cool, because that's how I communicate most of the time too. I say most, as I have to admit that I do use a lot of non-sensical grunting, hand waving and sighing most of the time.
I just tell myself that it's part of being the mother of three kids. Or a psych nurse. I have a lot of pride for him too. I'm proud of all my kids. Every Down wit they figure something new out or add a new trick to the repertoire, I'm on about it for days. They amaze me, these little people.
It amazes me that my eldest can rhyme Down wit the first 10 elements of the periodic table.
It amazes me that my daughter, who is the spitting image of me only prettiercan climb almost anything and completely destroy a room in under 30 seconds It was no less amazing to find out that Wyatt, the guy who wasn't allowed to hold the phone for the longest Down wit as he would press all the buttons and hang up on Mommy in Nunavut, decided to call both my BFF and my mother and have conversations with them both.
And eff anybody that thought differently. They might have not gotten the full gist of the conversation, but man, he was as pleased as anything at the results. And so am I. Way to show us up, dude. There's a lot of other things that I'm aware of too, despite my new postal code and our flighty "InterNOT". The Down wit new and improved asylum ' Down wit like that is somehow up for debate. The sheltered workshops issue. That cute is still king, supposed superpowers, angels and pedestal ableismthe r-word, the tragedy rhetoric that is still Down wit, and somehow, in some way, devaluing or marginalizing a group of people is ok, because, y'know, that's your opinion and that fact alone somehow warrants validity.
I may need more pain killers for that lot.
I haven't written anything here since November. I'm aware of that too. That doesn't mean I've faded off into the sunset or wandered off into a northern blizzard if that analogy is Down wit appropriate and to your liking. I just haven't had the spoons or the words to say what I've been mulling over. That time is coming again, thankfully. Once I get off this couch, that is I've resorted to lying on my side and typing now.
There's a whole lot Down wit awareness.
But, as I've said numerous times, that alone Down wit doesn't do anything. Getting better and finding my spoons and doing the education through the advocacy Making sure that both my twins are included fully in the classroom this fall, not just one of them All the little considerations and leanings in Down wit I do This is about as aware as this World Down Syndrome Day is going to get for me. If I do get off this couch at some point, I may shuffle off into the sunshine and visit some friends.
Down wit may wear socks too, but only because it is still here and only in my boots. I will Skype my family later on and hear of the day's discoveries and accomplishments. The subject of Down syndrome may or may not come up.
But if it does, I'll answer questions to the best of my ability as I generally do. It won't come up with family because Down syndrome is just an is at this point.